Mon 28th
Day 21
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I'm sure the situation is a common one. The sick patient or premature
baby is lying in front of you, hooked up to a number of machines,
all beeping and flashing at different times. At first their presence
is just another confusing aspect of the hospital, but as time draws
on, their function becomes clearer. This one is to measure heartbeat,
that one for respiration, and that one over there measures the percentage
of oxygen saturation in Nathan's blood. At times it's difficult
to focus on the patient. The statistics are too engrossing.
In the first days of life, we would be grateful for a weak movement
of a limb, or a flutter of his eyelid, but after almost a week of
slow deterioration, the focus is on the percentage of saturation
of oxygen in Nathan's blood. It swings from too high to too low,
following a pattern of wriggles and rests, delayed by thirty seconds
as Nathan's movements work their effect on the percentage of oxygen
saturation in Nathan's blood.
Nathan's nose is still very sore, and he is now back on a ventilator,
which is set to do all all his breathing for him. Nathan is still
receiving antibiotics, and is back on Morphine to allow him to relax,
and to accept the ventilator tube. He isn't receiving his hourly
feeds, as the nurses feel that the effort of digestion would be
too much. Instead, he is on Dextrose and a mixture of Sodium and
Potassium Chloride.
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Sun 27th
Day 20
| Nathan's nose is still fairly sore. The nurses talk about
using a different kind of device to put air into his nose.
Unfortunately, Nathan's not doing too well off the CPAP, but the
chloral and paracetamol are keeping him quiet.
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Sat 26th
Day 19
| Nathan's sore nose is still the issue of the day. It
makes him irritable, and so he's on paracetamol and cloral to calm
him and to ease the pain. We did manage to get him out for a brief
cuddle, after what feels like at least a year. It made us all feel
a lot better.
Good news is that Nathan continues to put on weight. He now weighs
in at 920g, a touch over two pounds.
The nurses have two substances that they can put between the CPAP
and Nathan's nose. Comfyfeel is a very soft fabric, and Jellyperm
is a jelly like substance that is both soft, and stops Nathan's
nose from drying out.
On the home front, an eventful day. Laura was involved in a car
accident (not her fault) . She's OK, but the car is probably a write-off.
We planted a tree (Japanese flowering cherry - Amanogawa) in commemoration
of Nathan's birth, and during the night, the roof leaked, damaging
the new paintwork in Nathan's room. Sometimes it literally pours.
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Fri 25th
Day 18
| Bradycardia happens when the heart slows down below acceptable
limits. In babies, whose normal heartrate is around 150 beats per
minute, bradycardia (or a brady - rhymes with
paddy) occurs when the heart rate is lower than 100 bpm. Bradys are
not uncommon amongst preterm, or even some term babies, but the length
an frequency of them can make them something to be concerned about.
Nathan has been having bradys all day, and this, coupled with his
nose becoming very sore indeed, and not being able to stay off the
CPAP for more than a few minutes due to a suspected lung infection,
has meant that he has returned to the hot room.
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Thu 24th
Day 17
| No sooner had Nathan won his first ever prize, that of
grumpiest baby on the ward, when he ruined it all by taking another
leap forward. At around three o'clock today for an hour, and again
from six 'til at least until we left the hospital at ten o'clock Nathan
was off the CPAP.
We now think that some of Nathan's grumpiness was due to his sore
nose. A CPAP has two prongs, one up each nostril. It's tied to each
of the two straps of his bonnet, and has to be tied quite tightly
to stop it from being dislodged. This means that Nathan has had
an intrusive piece of plastic pressed to his nose for the last few
days, and it's not used to such treatment. It was getting rather
sore (compare this to a few days ago when we were worried about
a lot more than a sore nose).
To give Nathan a break, the nurses have oxygenated his incubator
to 40%, and removed the CPAP. Nathan has to do a lot more of the
work, but he seems up to the task. Let's hope he can keep off that
nasty old CPAP, doing all his own breathing, so the nurses can slowly
reduce the oxygen level in the incubator. Of course, it won't happen
all at once, but here's hoping.
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Wed 23rd
Day 16
| One of things they warn you about with preterm babies
is that you go two forward one day, and one back the next. Today was
looking like a one back day. Nathan was grumpy all last night, and
didn't respond very well to being taken off the CPAP (the skin darkens
under the nose which shows that they aren't getting enough oxygen
from the air).
By the evening, however, Nathan had cheered up a bit. He still
wriggled and cried, but could be calmed down, and was good enough
to be allowed out for a cuddle.
In the end we spent two hours with him, fed him three times, changed
his nappy, and cuddled him for about twenty minutes. So it wasn't
such a bad day after all.
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Tue 22nd
Day 15
| Today Nathan moves into the big boys' and girls' room,
the West room, next to the hot room. This is a sign of confidence
from the nurses that he's not going to need the more advanced equipment
available in the hot room. We hope that Nathan will be happy in his
new surroundings but it's a shame he timed it wrong for the window
seat.
Apart from that, Nathan has been shows his mum and dad a few tricks
when it comes to nappy changes. Suffice it to say that he'll never
have trouble getting work as a pebbledasher. We spend the evening
watching Nathan do sets of push-ups, or at least trying to...
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